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Hello and welcome to my blog. My name is Sarah and I am just an ordinary girl living with a disability called Spina Bifida. For those of you who are not familiar with Spina Bifida it’s a neural tube birth defect that occurs when the spinal cord fails to develop properly while still in the womb. There are many different forms of Spina Bifida, and it affects everyone differently. Some forms of Spina Bifida are very mild, and you don’t even know someone has it while others affect your ability to walk and you become full-time wheelchair user.
The form of Spina Bifida that I have is called myelomeningocele which is the most severe type and I have to use a wheelchair for long distance and crutches to walk. I have a lot of health challenges and as a child I went to the doctor a little bit more than I do now but as I have grown older, I don’t need to go as much and only go for yearly checkups or when I am having problems. My assistive devices are not as depressing as society want us to believe because and they give me freedom and if it wasn’t for my assistive devices, I would not be able to leave my home. My life is sometimes harder than it has to be due to the lack of accessibility but I have four able-bodied sister that help make life a little bit easier when they can.
It is hard to be disabled in a world designed for able-bodied people but it’s not my disability itself that makes it hard but is the lack of accessibility and ableism that is the hardest part of being disabled. In 2011 I started looking for a job but after years of searching I gave up because I was sick and tired of being turned down from work because of my disability and decided if I wanted change, I would have to take matters into my own hands. I started my blog to spread awareness for my disability, be support system for all disabled and to break disability stigma that you see everywhere. I might not be the best blogger on the Internet, but I will do my absolute best to break disability stigma and help you understand what it’s really like to be disabled in a world designed for able-bodied so you have the resources to be able to recognize what is true about disability and what isn’t.
Thanks for reading, and I’ll see you soon with a new post,
I read all comments because I love hearing your thoughts but please be kind, keep all comments relevant to the post you are commenting on and your language clean. You don’t have to agree with everyone, but you should be respectful of everyone’s different points of view because rude comments toward me or any other commenters will not be tolerated. If you see that someone is struggling, it’s okay to offer support but please do not give out any kind of medical advice in the comment section of my blog even if you are a doctor because I am not qualified to diagnose anyone and can be held liable if it’s bad advice. The comment section of my blog is not for promoting yourself and any links that are dropped without my permission will immediately be edited out. If you violate my policy, your comment will be edited or completely removed from my site.
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