Why I Created A Disabilty-Focused Blog

When you decide you want to become a blogger one of the most important questions bloggers have to ask themselves is what do I blog about? There are so many different types of blogs such as fitness, lifestyle, politics, blogging, healthy living and even gardening blogs the possibilities are endless! When I first launched my blog I wasn’t sure if I would want to start a blog about my disability or if it would make me too uncomfortable because some things about my disability do but when I found out my friend Karly had one I figured I’d give it a go because if it worked out it’s something we could do together. Initially, when Karly asked me I thought she was kidding because my writing and editing skills were very weak since my school felt this was not an important skill to have and I would never use it.  I had never written anything of significance and the thought of writing all the time literally terrified me but after I was promised to get help with some editing the first few months of blogging it relieved some of my anxiety so I can now do it on my own.  It may not be perfect but I am not trying to be and my only mission is to educate not be perfect! I have a lot of interests and was a nervous wreck the first couple of months I started my blog that I was even sure this was the path I wanted to go down. As I became more comfortable and realized that there are many blogs I could have started that probably would make me more money. but I started this one because my experience has truly benefited others. Why start a disability blog? Here are a few reasons why I started mine and have no regrets about making that decision.

Help spread awareness-  Spina Bifida is the most common neural tube defect in the United States.  About 166,000 people in the United States currently live with Spina Bifida and an average of eight babies are born with Spina Bifida or similar birth defects each day. There are over 60 million women at risk of having a baby with Spina Bifida and although you can’t prevent this from happening taking precautions by not smoking or drinking when you are pregnant, planning your pregnancies to make sure you are getting enough folic acid in your diet will lower that risk. Since it’s such a common birth defect you would think that there would be tons of resources to help make our lives better and that is where you would be wrong.  It is very difficult for people with Spina Bifida to find a knowledgeable physician because a lot will say Spina what? and start googling what it is.  People with Spina Bifida do have access to resources that can make our lives easier and surgeries can be done to help us become more independent but there are not near enough doctors that are knowledgeable in this condition and can treat it. Some people struggle to find a good physician (especially in adulthood) because who you saw when you were a child and knows your history often won’t see you after you reach a certain age and it’s not as easy to find another that understands the complexities of your condition. Most people I meet that aren’t around any disabled people aren’t familiar with the challenges or what it is. I hope to change that because Spina Bifida along with many other disabilities like Muscular Dystrophy needs more awareness!

Help disabled people embrace their disability-  When you are disabled it is common for disabled people to struggle with embracing and accepting their disability especially if you in a toxic environment where you are being told that disability is a burden. All throughout high school, I can remember being told that disability was a sign of failure, a burden, and that I should not identify myself in that way because it’s not normal. My parents have always taught me that it is okay to be disabled and when I was going to school I was always being reminded that disability is a bad thing so I became a little confused.  Is disability a burden or should I embrace it?  My parents always told me it wasn’t but a lot of my teachers told me it was so who was right? I let my teachers and for the longest time convinced myself disability was a burden but after I graduated and all those toxic people were out of my life I realized one thing. My parents were right the entire time and disability is not a burden and I just let that negativity get to my head and control me.  Since I had this experience I have been able to teach disabled people in real life and through this blog that it’s okay to be disabled and help them embrace their disability. Without that experience, I don’t know if I would be able to do it as well because I may have still battled with it so I might have not been the best person to go to for help. Through this blog, I hope to help even more people by creating a safe place where we can talk without judgment!

Teach you easy ways to make your life easier– When you go to the doctor and are newly disabled often times your doctor will give you some tips on things you can do to make your life easier. Sometimes these tips are helpful and I would highly suggest you take them but sometimes their not and may, in fact, make your life harder. Most doctors have your best interest at heart and truly want to help make your life as easy as possible but if your doctor is not disabled then it may be a little bit difficult for them to know what you really need. I have been disabled since birth and have learned many different ways to make my life easier that I hope you can learn and use in your life.

Teach you the realities of disabilities- Many doctors will write articles from what they have found through many years of study to help people understand the complexities of different conditions which is very useful to those who want to be more knowledgeable and study a specific condition so I highly encourage doctors to write from time to time because it can truly benefit those just starting their careers. Unless your doctor is disabled one of the things they can’t do is write an article on the realities of disability. Disabled people constantly are struggling with accessibility and ableism and although you can learn these things from an abled person you can’t learn near as much as you can if that had a disability. Disabled people can take things to a deeper than an abled person may not have even thought of.  Your doctor will most likely be able to tell you something about accessibility and ableism from the things they read and may be able to give you some tips on how to make your life accessible. They won’t be able to do this to the extent a disabled person can because disabled people live with the condition we don’t have to read articles to have knowledge in some areas. Having a disability is not all cupcakes and rainbows but it not as bad you may think so if anything I hope if you learn that from this blog.

The reason this blog exists isn’t because I felt inspired or called to so do but it was an experiment that my friend said could benefit a lot of people and I should try.  In the beginning, I wasn’t sure if I wanted to write about it because some things make me uncomfortable but then I thought about it and it got me thinking that my disability makes me who I am and I don’t have to write about what makes me uncomfortable. I have other interests other than just disability that I incorporate on my blog but writing about disability is what keeps this blog alive and impacts the most people so I can’t imagine doing anything else. There are so many types of blogs I could have started that probably would have made me more money but I wouldn’t have it any other way than to write about disability. My posts would lose passion and to me, that is more important than making tons of money because you can always tell bloggers who are in it for the money and ones the don’t make a dime but love what they do! I love what I do and if I never made money from it I would still continuing doing because I am helping people embrace their disabilities and that will always be more important than any paycheck I will ever receive. Do you have a blog? What types of things do you like to write about?

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