The Life Of My Mom

The Life Of My Mom

My Rockin Disabled Life

Hi friends, my name is Sarah and I live with a disability called Spina Bifida and have more physical challenges than most people. I am on a mission to help break disability stigma and help you unlearn all the poor disability representation in the media.

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  1. Happy Panda

    Really beautiful and heart warming post. Your mom is doing an amazing job! Wishing her a very happy mother’s day! ❤️

  2. #chronicillnessVOICE May 11 health, medical, pharma and research news

    […] The Life Of My Mom My Rockin Disabled Life May 8, 2021 […]

  3. Katie Clark

    Wow, such a beautiful tribute. Brought tears to my eyes. The love of a mother like this is the most prescious thing on earth. I’m so glad you have her in your corner.

  4. Sue Jackson

    What a wonderful, loving tribute to your mother! It’s great that you recognize all that she has done to help make your life better 🙂 I hope you shared this post with her.

    I could really relate because I have a chronic illness AND at one point, both of my young sons did, too (it’s genetic). The younger one thankfully recovered after 10 years (his was milder), but my older son is now 26 and has been sick for 17 years (and me for 19 years), so the two of us have moved through this crazy life together for a very long time. What you said about insurance and medical appts especially rings true – I often say that dealing with the medical stuff is like a full-time job! Even at 26, I still go to my son’s doctor’s appts (at least to our specialists) because he’s not always well enough to understand and remember all that is discussed. Those expeditions wear us both out, but we actually enjoy the time together and each understands what the other is going through.

    Thank you for taking the time to write such a beautiful, compassionate tribute to your mom!


    Live with ME/CFS

    1. My Rockin Disabled Life

      Your welcome, I shared it with my mom so as far as I know she read it! My mom still goes with me to all my doctor’s appointments and I will be twenty-nine this year because sometimes I get overwhelmed with information and miss important things so it’s always a good idea to have someone else there taking notes.

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