Guest Post: Chronic Illness As An Expat: My Chronic Illness Story

My blog is all about educating you about different disabilities and conditions. Chronic illnesses and disabilities are very different but very important subjects so I asked my friend Alessia to tell her story about living with a chronic illness. Being diagnosed with a chronic illness is a daunting experience. While often not fatal, it changes … Continue reading Guest Post: Chronic Illness As An Expat: My Chronic Illness Story

Why Having Abled Friends Can Be Difficult

Pretty much all of my friends are disabled but it is not because I have something against abled friends. It is because I click better with the disabled and have had a couple bad experiences with abled friends. I will share a few things on why having abled friends is tough. Unsympathetic when running them … Continue reading Why Having Abled Friends Can Be Difficult

How Do I Manage Headaches With Hydrocephalus ?

I have a condition called Hydrocephalus which means I will get more headaches and migraines than most people. If you have never heard of Hydrocephalus is it's a build-up of cerebrospinal fluid also called CSF, around the brain and the purpose of it is to protect the brain and spinal cord Sometimes when there is … Continue reading How Do I Manage Headaches With Hydrocephalus ?

Disability And Chronic Illness Bloggers You Need To Follow Right Now!

Do you love learning about various chronic illnesses and disabilities? Me too! I may have a lot of knowledge about Spina Bifida but have very limited knowledge about other chronic illnesses and disabilities because I don’t have them. Disabled bloggers and chronic illness bloggers are not experts on all conditions but are only experts on … Continue reading Disability And Chronic Illness Bloggers You Need To Follow Right Now!

My Chronic Life: How Has It Changed?

My life has changed in so many ways since living with chronic pain! To be honest I crave the life I had before I started having constant pain because the life I have now is not even remotely similar. I don’t have the drive to do a lot of things I used to so there … Continue reading My Chronic Life: How Has It Changed?

The Pain Scale: Why Do I Loathe This Method?

If you are disabled or chronically ill you probably have heard of the pain scale and are very familiar with it! The pain scale is in pretty much in all doctor’s offices so even if you aren’t disabled you probably have heard of this method but just in case you haven’t I will educate you … Continue reading The Pain Scale: Why Do I Loathe This Method?

How To Tell Your Child They Are Not Getting Better

One of the toughest things other than being by my bedside through countless surgeries and putting my life in the hands of a physician that my parents had to discuss with me was that I was not going to get better. Most parents of disabled children will need to have this conversation because kids will … Continue reading How To Tell Your Child They Are Not Getting Better

Traveling With Chronic Pain

Next week I am leaving to go on vacation and don’t get me wrong I love visiting family but I hate traveling! I don’t think I know someone who hates traveling more than I do and now since living with chronic pain, I hate it even more! There are so many things that I have … Continue reading Traveling With Chronic Pain

How To Cope With Chronic Fatigue

Take a minute to think back to a really long exhausting workday. Do you remember how exhausted you were and how much you just wanted to get into bed? Now imagine having to repeat that same exhausting shift every day for a month with minimal rest. Exhausting right? Well, that is a small fraction of … Continue reading How To Cope With Chronic Fatigue

Bad Advice People Have Given Me

When you are disabled or chronically ill people will give you advice all the time! Sometimes it’s good advice that you may want to take and sometimes it is absolutely terrible advice that I would highly suggest that you don’t take. Some people just want to help but they don’t realize they are not helping! … Continue reading Bad Advice People Have Given Me