Listen To This Post https://open.spotify.com/episode/27879g3N1NcyVNlXyfc9vY?si=yazX4ycJRzKUpwr3oY6lrg Hello and welcome to my blog! My name is Sarah, and I live with a physical disability called Spina Bifida that also comes with a lot of other health challenges, such as chronic migraine, Hydrocephalus, neurogenic bladder and bowel, hip dysplasia, orthopedic issues, and many other challenges I have not … Continue reading A Little Bit About Me
Things I Have To Think About When Traveling With A Disability
Traveling is fun, but when you are disabled, it can be a little more stressful because you have to think about things a non-disabled person wouldn't have to consider. Non-disabled people have a lot to think about when they are traveling, but not nearly as much as a disabled person would because they don't have … Continue reading Things I Have To Think About When Traveling With A Disability
How To Help A Physically Disabled Person
When you have a physical disability, you often require more help than a non-disabled person would because there are some things your disability prevents you from being able to do independently. Every disabled person requires different levels of assistance, and it depends on what disability you have because some disabled people need more help than … Continue reading How To Help A Physically Disabled Person
Realities Of Living With Chronic Pain That Isn’t Talked About Enough
When you live with chronic pain, sometimes it can feel like no one gets it because most people do not have chronic pain and have no idea what it's like. It can be difficult for people without chronic pain to understand pain that they cannot see, and sometimes people don't believe your pain is real … Continue reading Realities Of Living With Chronic Pain That Isn’t Talked About Enough
What I Want People To Know About My Disability
When you are disabled, one of the first things you have to think about is what you are going to tell others about your disability, because you don't have to tell them everything. Non-disabled people sometimes think they are entitled to a disabled person's medical history and will ask us questions that we aren't comfortable … Continue reading What I Want People To Know About My Disability
Do You Have Disability Pride?
July is Disability Pride Month. During the month of July, we celebrate Disability Pride Month, which is an opportunity to break barriers, educate people on ableism, and celebrate the uniqueness and challenges of disabled people. Disability pride isn't about loving your disability all the time, but it's about recognizing that life with a disability is … Continue reading Do You Have Disability Pride?
Why Birthdays Are Hard When You Live With Chronic Pain
When you live with chronic pain, everything you do revolves around your pain levels because you can’t do anything without thinking about it. Chronic pain is a full-time job and shows up when we don’t want it to because it doesn’t care if it’s a holiday or your birthday. It is fun to celebrate your … Continue reading Why Birthdays Are Hard When You Live With Chronic Pain
What I Do On High-Fatigue Days
When you live with chronic pain, you often also struggle with fatigue because pain and physically and mentally drains you. Fatigue from pain can be very difficult for people without chronic pain to understand and sometimes people think they can relate because they had a long work day. Fatigue from pain is very different from … Continue reading What I Do On High-Fatigue Days
Side Effects I Experienced After Anesthesia
Disclaimer: In this post I am sharing my recent anesthesia experience. I am not a doctor and it is to be used for informational use only and is not a substitute for professional medical advice. When you are disabled, you often have a lot of complex health issues and sometimes need more surgeries than a … Continue reading Side Effects I Experienced After Anesthesia
Lessons I Have Learned From Living With Endometriosis
When you are newly diagnosed with endometriosis, it can feel overwhelming because although it is a common disease, it is often misunderstood in the medical community. Most people, including doctors, think that endometriosis is just a bad period and that birth control is going to solve all your problems. I have had painful periods my … Continue reading Lessons I Have Learned From Living With Endometriosis
What To Say To Someone With A Stoma
When you have a stoma, sometimes you are hesitant to tell other people about your stoma because not everyone sees it as a positive and thinks it's something that you should get rid of. A stoma is not something that all disabled people are going to want or need, but it is necessary for some … Continue reading What To Say To Someone With A Stoma