Listen To This Post https://open.spotify.com/episode/1yQkY9V5kzS6wBLCoUVuTe?si=qWZzqOZlR3-ODtXhuNnQ7w Exercise is important for everyone because building strength makes everything in life is easier. When you have a stoma that leaks a lot it can be more difficult to get your workout in because sometimes you are having too many problems and it prevents you from exercising. I live with … Continue reading How To Exercise With A Stoma
Listen To This Post https://open.spotify.com/episode/5KY8QMENof3Ds2drpvNQP9?si=znyDACvGRUmsGnpvDIVWzA September is Hydrocephalus Awareness Month. I live with a condition called Hydrocephalus, which is a neurological disorder that happens when there is an abnormal buildup of cerebrospinal fluid deep within the brain. This fluid usually helps cushion your brain, but when there is too much, it puts pressure on your … Continue reading Realities Of Living With Hydrocephalus
Listen To This Post https://open.spotify.com/episode/6l4GIWWdZOG4YeKr9RRI6K?si=m3FYoFCzT1e9pn6nBQCeeQ When you are disabled, there are plenty of things to be frustrated about because we live in an inaccessible world that is designed for non-disabled people. People sometimes think that disabled people hate everything about their lives and want to be cured because the media wrongly portrays the disabled community … Continue reading What I Love About My Disability
Listen To This Post https://open.spotify.com/episode/0bczY8L6baxklW45ge054T?si=1ucE0NYLR1y2NTc5Ixmd1A Pressure sores are common amongst people with Spina Bifida because a lot of people have very limited sensation in their tailbone area, and it's easy to get a bad sore and not know it because you don't feel pain. I have some feeling in my tailbone area, but it's not … Continue reading How To Prevent Pressure Sores
Listen To This Post https://open.spotify.com/episode/79CASQTJqc6B2XaOrTquNT?si=LcSOiJnQSDq0cFp8aGKLbw September is Pain Awareness Month. I live with chronic pain because I have a couple of medical conditions, such as Hydrocephalus, Chiari malformation, and endometriosis, that cause a lot of pain. Chronic pain does not affect everyone with Spina Bifida, and most people with my disability do not live with … Continue reading Is Chronic Pain Really That Invisible?
Listen To This Post https://open.spotify.com/episode/4A4StKTxvu3bugNGHuxUZt?si=wT8gqty4Rk2Eajbo3RPK1Q Disabled people are not able to do things at the same capacity as non-disabled people, and sometimes have to ask for help with things that most people can do themselves. Disability sometimes prevents you from being able to do some tasks well, and it's either impossible or very difficult. When … Continue reading Five Things Disabled People Should Not Feel Guilty About
Listen To This Post https://open.spotify.com/episode/6wKNd0ZJnByzcrLKKl2tfs When you are disabled, you often struggle with a lot of health challenges, and for the most part, you are an expert at managing your symptoms because a lot of people have lived with them for their whole lives and have years of experience managing them. If you get a … Continue reading What To Do When You Have A New Diagnosis
Listen To This Post https://open.spotify.com/episode/0ohbqwU6c5OStSnD7o6sSD?si=gC2-tRHuQ_ui-9uMdXARKg Disabled people are often isolated by non-disabled people because when people see a disabled person, a lot of the time they think we are so different from them but we are alike in more ways than people think. My disability makes me different but there are a lot of things … Continue reading Five Things That Both Disabled And Non-Disabled People Can Relate To
https://open.spotify.com/episode/6LctbbFCgTdLAsxVFbqiF1?si=bn-1ZfJxS-K5NVU3tOwD-A Disabled people are often viewed as inspirations by non-disabled people, and we are expected to be positive all of the time, and when we are not people are shocked. Disability acceptance can be helpful for disabled people, but disability acceptance does not mean you have to love everything about your disability, and I don't … Continue reading Five Things I Hate About My Disability
Listen To This Post https://open.spotify.com/episode/5wMhux5HifcoJ2pETRkhKO?si=WnO_rIa_Qye9_JGrtmp1JA When you are disabled, people often see your disability as something bad that needs to be cured because the media wrongly portrays the disabled community and tends to focus only on the negatives of a disability. Disability has more negatives than positives, but it shapes you into the person you … Continue reading How My Disability Has Changed Me
My Rockin Disabled Life 