September is Hydrocephalus Awareness Month! I live with a condition called Hydrocephalus, which is a neurological disorder that happens when there is an abnormal buildup of cerebrospinal fluid deep within the brain. This fluid usually helps cushion your brain, but when there is too much, it puts pressure on your brain and will kill you … Continue reading Realities Of Living With Hydrocephalus
When you are disabled, there are plenty of things to be frustrated about because we live in an inaccessible world that is designed for non-disabled people. People sometimes think that disabled people hate everything about their lives and want to be cured because the media wrongly portrays the disabled community and makes people believe that … Continue reading What I Love About My Disability
Pressure sores are common amongst people with Spina Bifida because a lot of people have very limited sensation in their tailbone area and easy to get a bad sore and not know it because you don't feel pain. I have some feeling in my tailbone area but it's not strong and it's easy for me … Continue reading How To Prevent Pressure Sores
September is Pain Awareness Month! I live with chronic pain because I have a couple of medical conditions such as Hydrocephalus, Chiari malformation, and endometriosis amongst many others that can cause a lot of pain. Chronic pain does not affect everyone with Spina Bifida and most people with my disability do not live with pain, … Continue reading Is Chronic Pain Really That Invisible?
Disabled people are not able to do things at the same capacity as non-disabled people can, and sometimes have to ask for help with things that most people can do themselves because our disabilities prevent us from being able to do some tasks well. There is nothing wrong with needing to ask for help because … Continue reading Five Things Disabled People Should Not Feel Guilty About
When you are disabled, you often struggle with a lot of health challenges and for the most part, you are an expert at managing your symptoms because a lot of people have lived with them for their whole lives and have years of experience managing them. When you get a new diagnosis, it can be … Continue reading What To Do When You Have A New Diagnosis
Disabled people are often isolated by non-disabled people because when people see a disabled person, a lot of the time they think we are so different from them but we are alike in more ways than people think. My disability makes me different but there are a lot of things that I enjoy as a … Continue reading Five Things That Both Disabled And Non-Disabled People Can Relate To
Disabled people are often viewed as inspirations by non-disabled people, and we are expected to be positive all of the time, and when we are not people are shocked. Disability acceptance can be helpful for disabled people, but disability acceptance does not mean you have to love everything about your disability, and I don't know … Continue reading Five Things I Hate About My Disability
When you are disabled, people often see your disability as something bad that needs to be cured because the media wrongly portrays the disabled community and tends to only focus only on the negatives of a disability. Disability has more negatives than positives, but it shapes you into the person you are today because, without … Continue reading How My Disability Has Changed Me
Reminder: This is my experience with hip replacement surgery but not everyone will the same experience and some people may have an easier or harder recovery than me. When you have Spina Bifida, a lot of the time you have a medical condition called hip dysplasia, and for those of you who don't know, it's … Continue reading What To Expect After Hip Replacement Surgery
My Rockin Disabled Life 