October is Spina Bifida Awareness Month. When you have a physical disability, such as Spina Bifida, everything in life is hard because when your spine is damaged, it often affects your entire body. People with Spina Bifida often use assistive devices and learn ways to accommodate their disabilities because you have to in order to … Continue reading Some Of The Most Frustrating Things About My Disability
October is Spina Bifida Awareness Month. I live with a lot of health challenges, but my main disability is Spina Bifida, which is a neurological neural tube birth defect that occurs when the spinal cord does not close properly during pregnancy. There are many different forms of Spina Bifida, and some people have more health … Continue reading What I Would Tell Someone Newly Diagnosed With Spina Bifida
Disability acceptance is difficult because disability is not accepted by society and is often seen as something bad that needs to be cured. Stoma acceptance can be even more difficult because most people don't see the good in a stoma and are horrified when you tell them you have a hole on your body that … Continue reading How I Learned To Accept My Stoma
When you have Spina Bifida, it is common for your bladder and bowel function to not work properly because when something affects your spine, it doesn't just give you back problems and other muscle groups can also be impacted. Chronic constipation will always be a part of my life because my bowels have never worked … Continue reading What I Wish People Understood About Living With Bowels That Don’t Work
Disabled people struggle with challenges that a non-disabled person will never fully understand, but that is okay because everyone has their own struggles. People sometimes think they need to relate to my disability to be able to connect with disabled people, and will claim to have a disability they clearly do not have. You don't … Continue reading How To Pick Out A Faker Who Claims To Have Spina Bifida
Disclaimer: This post was written for informational use only, but I am not a doctor, and it is not a substitute for professional medical advice. Please consult your healthcare team if you have questions about your child's disability. It is Spina Bifida Awareness Month! What is Spina Bifida? Spina Bifida is a neurological neural tube … Continue reading Everything New Parents Should Know If You Are Expecting A Child With Spina Bifida
My Rockin Disabled Life 