When you have Spina Bifida, it is common to have limited or no sensation in certain areas of your body. Everyone is different, and some people have more feeling than others and it depends on what form you have, because people with more severe forms tend to have less feeling than those with milder forms. … Continue reading What Is It Like To Live With Limited Sensation?
September is Hydrocephalus Awareness Month. I live with a condition called Hydrocephalus, which is a neurological disorder that happens when there is an abnormal buildup of cerebrospinal fluid deep within your brain. Everyone has this fluid, and for most people it's not a problem and cushions your brain. When you have Hydrocephalus, there is too … Continue reading Five Things You Will Never See Me Do Because Of Hydrocephalus
When you are disabled, finding a job is more difficult because we live in a world surrounded by ableism, and it can be difficult to find an employer who can see past your disability. As a physically disabled person, I have also struggled to find a job because you can visually see my disability, and … Continue reading Why I Quit My First And Only Job
When you live with chronic pain, it often feels lonely because most people do not have chronic pain and think that you can cure yourself by taking your medication, eating healthy, and exercising more, but that is only true for some people. Chronic pain affects everything you do and changes you because you are not … Continue reading Five Things Chronic Pain Takes From You
When you are disabled, accessibility is important to you because you can't navigate the world when there are too many barriers. Non-disabled people sometimes think that accessibility only benefits disabled people and that they don't have to care about it because they aren't disabled. Everyone should care about accessibility because the disability community is the … Continue reading Accessibility Features Everyone Benefits From
When you are disabled, one of the hardest things that a disabled person has to learn is to accept is the reality that they are never going to get better. Disability acceptance is hard because we live in a world surrounded by inaccessibility and ableism where disability something bad that needs to be fixed. Some … Continue reading What No One Tells You About Disability Acceptance
When you are in pain and go to the doctor, it is Iikely you will be given the pain scale and asked to rank your pain from zero to ten. The pain scale has its place, and it's great for children, but it's not the best way to measure pain because it only tells you … Continue reading Questions I Wish Doctors Would Ask Chronic Pain Patients
Disabled people are constantly learning new ways to navigate ableist comments because we hear them constantly, and most of the time, I don't think it's intentional. Most people don't know understand what ableism is and say things to disabled people with good intentions without realizing how harm that comment was. I am able to ignore … Continue reading Harmful Comments Non-Disabled People Need To Stop Saying To Disabled People
When you are physically disabled, everyday tasks that come easily to most people can be difficult because your physical disability sometimes prevents you from being able to do certain tasks. Non-disabled people sometimes think that disabled people can't do anything for themself and need help with everything, but that could not be more wrong, and … Continue reading How I Do Different Tasks
When you live with chronic pain, you are in pain all the time and don't get a break from it, but not every day is going to be a bad day. You have good days when your pain is bearable and bad days when getting up to go to the bathroom feels like it should … Continue reading Reminders For Bad Pain Days
