Disability advocacy is important because anyone can become disabled, and a more accessible world benefits everyone, not just disabled people. As a disabled person, I have been advocating for my needs my entire life because I have had no choice but, within the last eight and a half years, I decided to take my advocacy … Continue reading Lessons I Have Learned With Years Of Online Advocacy
Happy New Year! It is that time of year where people make new goals and reflect on the things that they achieved this year. Non-disabled people often will have big accomplishments and will try to do something bigger in the upcoming year but when you are disabled, it can be difficult to come up with … Continue reading My Reflections Of 2025
Merry Christmas! Holidays are stressful for everyone because there is so much that needs to get done for Christmas Day and only so much time to get it all done. It can be even more stressful for people with chronic pain because you have to do the same things to prepare for the holidays that … Continue reading Why The Holidays Are More Difficult For People With Chronic Pain
When you are disabled, sometimes you may need to have multiple surgeries to maintain good health. Some people with Spina Bifida have had a lot of surgeries, but not everyone with Spina Bifida needs multiple surgeries, and it depends on what form you have, because milder forms will need fewer surgeries than severe forms. I … Continue reading Lessons Learned from Multiple Surgeries
When you go to an event and are surrounded by people that you do not know, it is completely normal to feel a little anxious. Everyone gets anxious when they try new things, but for some people, it's not just a little anxiety, and it completely disrupts your life. Social anxiety is something that most … Continue reading How To Cope With Social Anxiety
Winter can be difficult for people with disabilities and chronic illnesses because extreme temperatures and changes in the weather, in general, often trigger pain and flare symptoms. In Florida, we get some cold days, but it is not freezing cold every single day all winter long, and it's the best time to come to Florida … Continue reading How To Stay Warm In Winter With A Physical Disability
When you are disabled and have to go to the bathroom out in public, sometimes you may need to use the accessible bathroom to be able to take care of your needs. Non-disabled people sometimes think that I get upset when I see someone who doesn't look disabled come out of the accessible bathroom. A … Continue reading Why Would Someone Need To Use The Accessible Toilet?
Hip replacement surgery is not something that everyone is going to need, and it is not just for old people. If you are having a lot of hip pain that you are not getting relief from with physical therapy, it's something you may have to consider. I had hip replacement surgery a couple of years … Continue reading What Not To Do After Hip Replacement Surgery
When you have endometriosis, sometimes it is painless, and you don't know you have it until you try to get pregnant and are unable to, but unfortunately, severe, debilitating pain that significantly affects your quality of life is a common struggle for many people with endometriosis because it's not just a bad period. I live … Continue reading How I Accommodate My Life For Increased Pain
When you live with pain, often you want to do a lot of things with your friends, but live in a body that has limited energy and doesn't want to do anything except sit on your couch and watch TV. We are approaching the holiday season, which means a lot of people are running around … Continue reading How To Make The Holidays Easier With Chronic Pain
My Rockin Disabled Life 