How To Manage Medical Stress

When you are disabled or chronically ill, you often deal with a lot of health issues on a regular basis that can be difficult to manage. It is difficult and stressful to manage a health condition, but it is even more stressful when you are having health issues that you can't fix alone and need … Continue reading How To Manage Medical Stress

Disability Etiquette Everyone Should Know

Non-disabled people often do not know how to talk or treat disabled people, and sometimes think that they can't talk to disabled people in the same way they would to non-disabled people. Disability is often seen as something that needs to be cured, and sometimes non-disabled people say things to us with good intentions that … Continue reading Disability Etiquette Everyone Should Know

Things That Come Easy To Me That Non-Disabled People Struggle With

When you are disabled, there are a lot of things that you do more slowly because of your disability or may not be able to do at all. Non-disabled people tend to focus on all the things disabled people can’t do but what a lot of people may not know is that there are some … Continue reading Things That Come Easy To Me That Non-Disabled People Struggle With

When Should You Get A Second Opinion?

Disability makes a lot of non-disabled people uncomfortable because people often see disability as something bad that needs to be fixed. Non-disabled people love to blame my disability on my medical team and are very quick to tell me that I need to get a second opinion because disability makes a lot of people uncomfortable. … Continue reading When Should You Get A Second Opinion?

Thoughts You Have When You Live With Chronic Pain

Healthy people pray that their routine scans are going to be normal, but when you are in pain, normal scans can feel devastating. Doctors don't investigate normal imaging, and you remain in pain, but even though your doctor can see nothing wrong, that doesn't mean your pain is not real. I talk a lot about … Continue reading Thoughts You Have When You Live With Chronic Pain

How To Cope With Body Changes With Endometriosis

When you have endometriosis, it is not uncommon for your body to change because often times it causes you to lose or gain weight. People often praise weight loss because it is often believed to always be good, and criticize weight gain. As a disabled person, I never make body comments even if I know … Continue reading How To Cope With Body Changes With Endometriosis

Accommodations I Would Need In The Workplace

When you are disabled, it is more difficult to find a job because employers often discriminate and think you are less capable of doing the job than a non-disabled applicant. There are some types of jobs that my physical disability will prevent me from being able to do well, but the belief that I am … Continue reading Accommodations I Would Need In The Workplace

How To Support Someone With Chronic Pain

When you live with chronic pain, it can often feel isolating because chronic pain is often invisible, and sometimes you don't feel supported. People without chronic pain often do not understand how it affects everything you do, because when you live with pain, you get good at faking being well and don't look like you … Continue reading How To Support Someone With Chronic Pain

Activities That Are Not The Same For Me

Non-disabled people often think that disability prevents you from being able to do anything for yourself, but that couldn’t be any further from the truth, and your disability only prevents you from doing some things. As a physically disabled person, I struggle with a lot of tasks and sometimes have to ask for help on … Continue reading Activities That Are Not The Same For Me

How To Support Someone Struggling With Incontinence

When you are disabled and have limited mobility, sometimes it can be more difficult to go to the bathroom because you can't exercise to the extent a non-disabled person can to prevent constipation. Incontinence is something that many people with Spina Bifida struggle with because often your bowels are impacted, and you can't go to … Continue reading How To Support Someone Struggling With Incontinence