When you have Hydrocephalus, it is so important to be aware of your body and take note of any new pain that might indicate a possible shunt malfunction because that can be serious and fatal if left untreated. I live with Hydrocephalus, and for those of you who aren't familiar, it's a neurological condition that … Continue reading Do I Have A Possible Shunt Malfunction?
When you are disabled, there are a lot of things that your disability will prevent you from being able to do well that come easily to non-disabled people. Non-disabled people sometimes do not realize how good they have it and complain about little things, such as having to go to the gym, that are impossible … Continue reading Five Things Non-Disabled People Didn’t Realize Were Privileges
When you have a physical disability it is easier to fall and hurt yourself. How do you prevent falls?
Exercise is important for everyone because when you build strength everything in life is easier. When you have a stoma that leaks all the time it can be difficult to get your workout in because sometimes you have too many stoma problems that make exercising impossible. I live with a stoma and try to exercise … Continue reading How To Exercise With A Stoma
If you weren't already aware, September is Chronic Pain Awareness Month! Chronic pain is frustrating to live with because the constant pain significantly affects your quality of life and people often don't believe pain that they cannot see. You have to constantly advocate for yourself to educate others because when it comes to pain, there … Continue reading Lessons I Have Learned From Living With Pain
September is Hydrocephalus Awareness Month! I live with a condition called Hydrocephalus, which is a neurological disorder that happens when there is an abnormal buildup of cerebrospinal fluid deep within the brain. This fluid usually helps cushion your brain, but when there is too much, it puts pressure on your brain and will kill you … Continue reading Realities Of Living With Hydrocephalus
When you are disabled, there are plenty of things to be frustrated about because we live in an inaccessible world that is designed for non-disabled people. People sometimes think that disabled people hate everything about their lives and want to be cured because the media wrongly portrays the disabled community and makes people believe that … Continue reading What I Love About My Disability
Pressure sores are common amongst people with Spina Bifida because a lot of people have very limited sensation in their tailbone area and easy to get a bad sore and not know it because you don't feel pain. I have some feeling in my tailbone area but it's not strong and it's easy for me … Continue reading How To Prevent Pressure Sores
September is Pain Awareness Month! I live with chronic pain because I have a couple of medical conditions such as Hydrocephalus, Chiari malformation, and endometriosis amongst many others that can cause a lot of pain. Chronic pain does not affect everyone with Spina Bifida and most people with my disability do not live with pain, … Continue reading Is Chronic Pain Really That Invisible?
Social media makes it easy to entertain ourselves but there are times when social platforms are making updates, or the Internet is down because we lost power, and you don't have access to social media. People are addicted to their phones these days and don’t know what to do with themselves when they don’t have … Continue reading How To Entertain Yourself Without Social Media
My Rockin Disabled Life 